Well, we’re still in the PICU. Basically it’s just a matter of doing the Dopamine disco. You see Kajsa’s blood pressure has typically been around 75/35 for the past several months. (Amazing, really, considering that she was on three different B.P. meds prior to dialysis.) And this is not a bad thing for a kid her age. But her new kidney came from a 22 year old woman, and it’s used to a much juicier standard of living, so to speak.
So we’ve been artificially elevating her B.P. through a couple of measures. Firstly, Dopamine. This is a drug that artificially bumps it up through, I believe, adrenal sources. But don’t quote me on that. The only thing I really need to know is what it does – not how it does it.
The other method being pursued is saline boluses (boli?) This simply pumps up the volume, creating a physical challenge, thereby raising the blood pressure, as well.
The good news is that we weaned the dopamine least night. And she only needed two boluses (bolum?) yesterday.
The bad news is that she awoke today with a high fever – again. So we’re changing antibiotics, once more. Bleh!
Gee, don’t I sound like I know what I’m talking about? Is there anyone out there who remembers when my idea of medicine was defined by sipping slippery elm tea and chewing on a licorice root? Life sure can change, eh? I guess kids’ll do that to you.
Speaking of kids, Kajsa’s spirits are a bit low. She’s just sooooo bored. She was extremely excited to see our friends, Ash, Ember, Chrissy and Shaun yesterday. But the hard part was that when they left, they took Chris with them. So I’m trying to find a way to cheer her up. I only left just now ‘cause she finally drifted off.
We absolutely don’t need to anymore stuff right now. I mean, you can send it if you really want to. But don’t feel compelled on account of us. Right now her big thing is simply loneliness and boredom. I think we’re on the same page with that one.
If you want to send a card or even a CD of fun kids’ songs, let me know. I’ll email our info to you. And yes, Shelli and Miriam, I’ll be shooting something off to you as soon as I can. Hopefully with this session, but I can’t guarantee it.
But back to Kajsa: You need not worry about rejection. This is not among our current concerns. And she’s on so many prophylactic meds. We’ve got anti-bacterial, ant-viral, and anti-fungal. I feel like at any moment Kajsa’s body will just up and reject my stinky old earth mama self. Just kidding.
But only kind of. Any one out there ever read The Fifth Sacred Thing? If so, you kind of grasp how oddly warped this situation might feel to me. And while I know that it’s far beyond worth it, I am seriously aching to get back to our garden.
I want to show Kajsa how to coax a ladybug onto her finger so that we can gently place it on a tomato stem. I want her to get excited as we watch a zucchini grow in a bottle, and stare into the huge face of a sunflower. This is what I yearn to spend our summer doing.
And so each night I make up stories for the sweetie about a little girl named Kajsa and her adventures in the woods with her dragon friend Chris. And after she nods off, I daydream the next chapter for her…and of course for myself, as well.